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Resources for Amputees: Advocacy

5 August 2009 14 views One Comment

As a member of the Editorial Board for the Journal of American Association of Nurse Life Care Planners, I am in charge of our fall journal which carries a theme of Life Care Planning for those with amputation.  Typically this means that I am in charge of locating articles for submission, sending them in to the board members for review and editing, meeting deadlines, making suggestions for topics and the like.  I have made it a personal goal to also write at least two articles to be included in this journal.

In the next few weeks I will be posting resources that I have collected as part of my writing goal.  I was surprised that there are numerous resources available, yet I was unaware of most of these despite my special interest in amputation injury.

Please enjoy these resources and pass them along when appropriate.  Many of the resources can be used for disabilities other than amputation.

Advocacy Resources:

American Association of People with Disabilities

800.285.844

www.aapd-dc.org

American Bar Association

800.285.2221

www.abanet.org/disability

Americans with Disabilities Act Hotline

800.514.0301

Amputee Coalition of America

888.267.5669

www.amputee-coalition.org

Fair Housing Act

202.708.1112

www.hud.gov/offices/fheo/FHLaws

Independent Living Centers Directory

www.virtualcil.net/cils

National Patient Advocate Foundation

757.873.0438

www.npaf.org

SNAP: Special Needs Advocate for Parents

888.310.9889

www.snapinfo.org/home.html

Voices for America’s Children

202.289.0777

www.childadvocacy.org

Wrightslaw

www.wrightslaw.com

Advocacy Publications

“Advocating for Your Child.” Rick Bowers. Expectations. 2005, pp.30-31.

www.amputee-coalition.org/expectations/advocating.html

“Taking Charge: How to Become your child’s best advocate.” Jenifer Simpson and Helen Rader. inMotion.May/June 2001, pp. 16-18.

www.amputee-coalition.org/inmotion/may_jun_01/childs.html

What is your favorite advocay resources?  Have we missed something?  Send your suggestions to be included.

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