Resources: Live at Home (National)
As promised, here are the national resources for those who live and receive care in the home.
ABLEDATA: Provides information on assistive technology and rehabilitation equipment, including how to find and purchase it. Also offers an online forum for consumers, caregivers and others to submit and read reviews of products and classified ads of equipment for sale. (800) 227-0216
Able Project.org: A nonprofit organization with an online directory that allows people to research, compare, locate and obtain mobility and assistive products, such as wheelchairs, canes, walkers, bars and rails. (408) 263-8000
Alzheimer’s Association: Provides reliable information, care consultation and supportive services for dementia caregivers through state and local chapters. The website also includes an interactive tool, CareFinder, which helps families to:
• Recognize dementia care
• Plan and pay for care
• Communicate with care providers
• Find local support and resources
(800) 272-3900
http:/ / www.alz.org
AssistiveTech.net: Government-sponsored website with a directory of assistive devices and other products, which includes information about cost and vendors. (800) 726-9119
http:/ / www.assistivetech.net
Association of Jewish Family & Children’s Services (AJFCS): An online directory of AJFCS member agencies throughout the country. Services include:
• Care management
• Chore services
• Adult day services
• Kosher meals on wheels
• Respite care
(800) 634-7346
CancerCare: Provides support services for anyone affected by cancer including limited financial assistance grants for:
• Transportation
• Child care
• Home care
Patient must currently be receiving treatment for cancer (800) 813-4673
Catholic Charities: Provides social services to individuals in need, including family support, respite care and home care services.
Eligibility varies by program (see website)
http:/ / www.catholiccharitiesinfo.org
Easter Seals: Assists children and adults with disabilities and their families by providing adult day services, including medical and social services. Children and adults with disabilities. (800) 221-6827
Faith in Action: Network of interfaith volunteer caregiving programs across the country. Volunteers shop, cook, drive or just check in on those with long-term health needs.
Eligibility varies by program (see website) (866) 839-8865
http:/ / www.fianationalnetwork.org/
Hospice Foundation of America: Provides information about end-of-life care. Its website includes a “Locate a Hospice” search which allows the user to search for hospice and palliative care programs, and a “Caregiver‘s Corner” that offers publications and tips on caregiving for persons near the end-of-life. See website for local contact information.
http:/ / www.hospicefoundation.org
Lutheran Services: Provides services ranging from health care to disaster response, as well as services for children and families and care for older adults. Eligibility varies by program (see website)
http:/ / www.lutheranservices.org
Meals on Wheels Association of America (MOWAA): Offers online directory of local meal programs across the country for adults who are elderly, homebound, disabled, frail, or at risk.
National Adult Day Services Association (NADSA): Online directory of NADSA member agencies throughout the country (including adult day services and adult day health programs).
(800) 558-5301
National Association for Home Care and Hospice (NAHC): Online “Agency Locator” helps consumers to find and choose a home care provider in their state and local area to match their specific needs. Database consists of NAHC members, more than 20,000 home care and hospice agencies.
National Association of Professional Geriatric Care Managers: Online directory of its members, who provide services throughout the country at varying fees. These professionals (nurses, social workers, etc.) specialize in aging and elder care and can help families assess needs and plan suitable care.
National Center on Senior Transportation: Provides online directory of transit agencies and community transportation providers for older adults. A toll-free line is available to answer questions regarding transportation services for older adults. (866) 528-6278
http:/ / www.seniortransportation.net
National Hospice and Palliative Care Organization: Provides information about end-of-life care. Its online “Find a Provider” search allows the user to search for member hospice and palliative care programs for individuals who have advanced illness or have been considered terminally ill by a physician. (800) 658-8898
http:/ / www.nhpco.org
National Private Duty Association (NPDA): Online directory of home care agencies, both medical and non-medical, in 44 states. Database consists of NPDA members.
http:/ / www.privatedutyhomecare.org
National Resource Center on Supportive Housing and Home Modification: Sponsored by the University of Southern California, the website features a section entitled “Home Modification for Caregivers” and an online national directory of home modification resources geared to help older persons remain independent.
Senior Corps- Senior Companion Program: Provides assistance to frail older persons and adults with disabilities so they can live independently in their own homes or communities. Volunteers offer:
• Respite for caregivers
• Companionship to care recipients
• Help with various tasks and chores
Frail older adults and adults with disabilities
Shepard’s Centers of America: Some centers hold monthly meetings of education and support for those who care for older adults. Centers also provide:
• Respite care
• In-home visitors
• Home health aides
• Support groups
• Adult day care
• Information and referral
(800) 547-7073
http:/ / www.shepherdcenters.org/ memberCenters.aspx
United Way: Over 1,350 programs operating throughout the country to promote increased access to health care for disease prevention and treatment, and medical rehabilitations for people with disabilities. Services focus on under- and uninsured populations.
http:/ / national.unitedway.org
Visiting Nurse Associations of America (VNAA): Online resource helps consumers locate a VNA in their area. VNAs offer comprehensive home health care or personal care to individuals in their respective communities for a fee. The website includes tips on choosing a home health agency and information about insurance coverage. Services vary by agency but may include:
• Skilled nursing
• Home health aide services
• Rehabilitation therapies: physical, occupational and speech-language
• Medical social services
• Hospice and palliative care services
• Anyone requiring care – medical orders from a physician are usually required for care
* Individuals must pay privately. Medicare, Medicaid or private insurance may pay for the service if the care is medically necessary, depending on each payer’s eligibility requirements http:/ / www.vnaa.org
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