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Resources: Family Caregiving

19 June 2009 26 views 3 Comments

AARP (Online Resources): A consumer organization for people 50 years and older. Provides online information about issues related to aging, including:
Long-term care and retirement
• Financial and legal information
• Resources on family caregiving
• Internet resources on aging

(888) 687-2277
http:/ / www.aarp.org

Access to Health Insurance / Resources for Care: Online resource that provides information on low-cost and affordable health insurance, health care, and hospice.  It is a free service from the Actors’ Fund of America’s Health Insurance Resource Center. (800) 798-8447

http:/ / www.ahirc.org/

AgingPro: Online directory of aging and caregiver support services. Offers access to professionals in aging, resources, educational articles, virtual classroom, ask the expert, and support groups.

http:/ / www.agingpro.com

AGIS: Provides information and planning tips about long-term care and caregiving. Its website includes a “Find Facilities and Services” search tool to help consumers find long-term care housing, caregiver support,  hospice and palliative care programs and other aging services. Offers a “Caregiver Kit” to help caregivers.

http:/ / www.agis.com/

Alzheimer’s Association: Provides reliable information, care consultation and supportive services for dementia caregivers through state and local chapters. The website also includes an interactive tool, CareFinder, which helps families to:
• Recognize dementia care
• Plan and pay for care
• Communicate with care providers
• Find local support and resources

(800) 272-3900
http:/ / www.alz.org

American Red Cross – Family Caregiver Training Program: Local Red Cross chapters offer in-person educational sessions, for a nominal fee, on topics such as:
• Home safety
• Healthy eating
• Bathing
• Legal and financial issues
• Self-care for the
caregiver

http:/ / www.redcross.org

ARCH National Respite Network: Online “Respite Locator” is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members.

http:/ / www.respitelocator.org

Brain Talk Communities: An online forum for caregivers and neurology patients to provide support for each other and to learn about community resources and services.

Anyone caring for someone who meets care recipient eligibility. Anyone with a neurological disorder.

http:/ / brain.hastypastry.net/ forums

CancerCare: Provides support services for anyone affected by cancer including limited financial assistance grants for:
• Transportation
• Child care
• Home care

Patient must currently be receiving treatment for cancer. (800) 813-4673

http:/ / www.cancercare.org

Caregiver.com: Provides online information and support to family caregivers, including a resource that helps to identify and locate caregiver support groups and other caregiver resources in specific counties, including non-profit organizations, rural caregiver resources and products and services. (800) 829-2734

http:/ / www.caregiver.com

Caregivers Marketplace: A program that offers cash back on goods and products that are not typically covered by insurance or Medicare. Products eligible for cash back include nutrition, incontinence supplies, bathing and skin care, and aids for daily living. (800) 888-0889

http:/ / caregiversmarketplace.com

CAREgivinghelp.org: Provides information about a variety of caregiving topics. Also provides access to geriatric care specialists. (773) 576-1602

http:/ / www.caregivinghelp.org

Caring Connections: A program of the National Hospice and Palliative Care Organization that offers free resources and information (online and over the phone) about end-of-life care and services. Includes information about:
• Advance care planning
• Financial assistance
Hospice care and grief

(800) 658-8898 HelpLine in Spanish: (877) 658-8896

http:/ / www.caringinfo.org

Children of Aging Parents: An online support group for adults caring for their parents or other relatives. Also provides a list of in-person support groups in different states. Anyone caring for a family member or friend. (800) 227-7294

http:/ / www.caps4caregivers.org

Daily Strength: Offers over 500 online support communities and information exchange on a variety of health and wellness issues, including caregiving.

http:/ / www.dailystrength.org

Easter Seals: Assists children and adults with disabilities and their families by providing adult day services, including medical and social services. Children and adults with disabilities. (800) 221-6827

http:/ / www.easterseals.com

Faith in Action: Network of interfaith volunteer caregiving programs across the country. Volunteers shop, cook, drive or just check in on those with long-term health needs. Eligibility varies by program. (866) 839-8865

http:/ / www.fianationalnetwork.org/

Family Caregiver Alliance (FCA): FCA is a nonprofit caregiver support organization that offers online resources, fact sheets and electronic newsletters which serve as a central source of information and assistance to family caregivers in every state. FCA’s National Center on Caregiving offers a national telephone hotline.  The website also hosts three online support groups open to the public for caregivers and their loved ones:
Caregiver Online Group
•  Huntington’s Disease & Movement Disorders Online Group
•  LGBT Caring Community Online Support Group

Caregiver Online Group: Family and friends caring for adults with cognitive disorders and other chronic health conditions. Huntington’s Disease & Movement Disorders Online Group: Families, friends and professionals affected by HD, Parkinson’s or other movement disorder.
LGBT Caring Community Online Support Group: Lesbian, gay, bisexual and transgender caregivers of adults with chronic health problems. Care recipients looking for information may find it on FCA’s website or by calling the hotline.  The online groups are not designed for care recipients. (800) 445-8106

http:/ / www.caregiver.org

Family Caregiving 101: A joint project of the National Family Caregivers Association and the National Alliance for Caregiving that provides online information, resources and advice on topics related to family caregiving, including personal stories from family caregivers and encouragement for caregivers to protect their own physical and mental health.

http:/ / www.familycaregiving101.org

Lotsa Helping Hands: An online volunteer coordination service for friends, family, colleagues, and neighbors to assist older adults in need. Offers a private group calendar to organize meals delivery, rides, and other caregiving tasks for a loved one.

http:/ / nfca.lotsahelpinghands.com

National Center on Caregiving (NCC) at Family Caregiver Alliance (FCA): Offers a national telephone hotline, online resources and printed publications which serve as a central source of information and assistance to family caregivers in every state. (800) 445-8106
http:/ / www.caregiver.org

Share the Care: Offers a handbook for family caregivers, friends and neighbors that contains guidelines for developing a support network and coordinating care for older or disabled individuals. (646) 467-8097

http:/ / www.sharethecare.org

Strength for Caring: Sponsored by The Caregiver Initiative, Johnson & Johnson, this online resource and community for family caregivers offers articles and advice, including an extensive caregiver manual. Other sections of the site focus on community, health conditions, daily care, housing and money, and insurance.

http:/ / www.strengthforcaring.com

Well Spouse Association: A national, non-profit membership organization  that provides support to wives, husbands, and partners of the chronically ill and/or disabled through established support groups in communities all over the country. Any spouse or partner caring for someone who is chronically ill or disabled. (800) 838-0879

http:/ / www.wellspouse.org

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3 Comments »

  • Care GiverNo Gravatar said:

    Thanks for the amazingly thorough list of resources. I've been Googling family caregiver resources and finally finding this will save me so much time and future frustration. Thanks again!

  • Care GiverNo Gravatar said:

    Thanks for the amazingly thorough list of resources. I've been Googling family caregiver resources and finally finding this will save me so much time and future frustration. Thanks again!

  • adminNo Gravatar (author) said:

    So glad you found it helpful. I have more resources coming. I am collecting resources on elder care and related issues as well as amputation. I try to post one or two groups per week. Check back soon. Also remember that you can use the search feature on the left hand side of the blog. It will locate any past articles or posts on the subject for which you search. Victoria

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