Brain Injury Resources

Our nurses here at VP Medical Consulting are currently working on a life care plan for a young lady with a traumatic brain injury. In developing the plan we consult many resources.  I thought our readers might find this information useful so I decided to gather them all up on one place and share them here.  

 

 

If you have a resource I have missed, please let me know and I will be sure to add it.

 

•  ABLEDATA-Resource for Assistive Technology Information www.abledata.com/abledata.cfm?pageid=19327
  

 

• America’s Heroes at Work-Employment Challenges of Returning Service Workers  www.americasheroesatwork.gov/ 800-526-7234
  

 

• American Speech-Language-Hearing Association -Resources for Communication Disorders-www.asha.org
  

 

• American Veterans with Brain Injuries-Support to the families of American service members and Veterans who have TBI www.avbi.org
  

 

• Blinded Veterans Association (BVA)-Helping Veterans and their families with challenges of blindness  www.bva.org
  

 

• Brain Injury Association of America -National organization serving individuals and families with TBI -www.biausa.org  -800-444-6443
  

 

• Brain Injury Chatroom -Peer support for people with TBI -www.braininjurychat.org
  

 

• Brain Injury Partners: Navigating the School System - Advocates for school-aged children with TBI - free.braininjurypartners.com
  

 

• Centers for Disease Control and Prevention -Online source for health information -www.cdc.gov -800-311-3435
  

 

• Defense and Veterans Brain Injury Center-Serving active duty military, their dependants and veterans with TBI -www.dvbic.org -800-870-9244
  

 

• Disabled Sports USA -National nonprofit organization serving war veterans through sports rehabilitation -www.dsusa.org -301-217-0960
  

 

• Epilepsy Foundation- National organization dedicated to the welfare of individuals with epilepsy -www.epilepsyfoundation.org -800-332-1000
  

 

• Family Care Navigator-State-by-State Help for Family Caregivers caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083
  

 

• Give an Hour -Nonprofit organization providing free mental health services to U.S. Military personnel and their families -www.giveanhour.org
  

 

• HDI Publishers- Resource for Brain Injury books -www.braininjurybooks.com-

 

• Health Resources and Services Administration- U.S. Dept of Health and Human Services -www.hrsa.gov -301-443-3376
  

 

• Illinois Warrior Assistance Program-Confidential assistance for Illinois Veterans- www.illinoiswarrior.com - 866-554-4927
  

 

• International Society for Neurofeedback & Research-  Nonprofit professional association promoting excellence in practice, education & research for neurofeedback. – www.isnr.org
  

 

• Journal of Head Trauma Rehabilitation -Resource for publications -www.headtraumarehab.com/pt/re/jhtr/home.htm
  

 

• Lash & Associates Publishing/Training, Inc -Resource for publications -www.lapublishing.com
  

 

• LEARNet (Living Education and Resources Network) -Resource for teachers, clinicians, parents and students of brain injury

 

• Brain Injury Association of New York State
  

 

• MedlinePlus -Online health information provided by the US National Library of Medicine -www.nlm.nih.gov/medlineplus/headandbraininjuries.html#cat57
  

 

• Model Systems Knowledge Translation Center -Summarizes research, identifies health information needs and develops systems for sharing info on TBI -msktc.washington.edu
  

 

• National Association of State Head Injury Administrators- Assists state government in promoting partnerships and building systems to meet the needs of TBI patients www.nashia.org -301-656-3500
  

 

• National Brain Injury Research Treatment and Training Foundation-Nonprofit foundation providing support for research, training and treatment for TBI -www.nbirtt.org -434-220-4824
  

 

• National Center for Medical Rehabilitation Research- Foster development of scientific knowledge needed to enhance the health, productivity, independence and quality-of-life of people with disabilities. -http://www.nichd.nih.gov/about/org/ncmrr/tsr/Pages/index.aspx -800-370-2943
  

 

• National Dissemination Center for Children with Disabilities -  Research based information on effective educational practices of children with disabilities – www.nichcy.org
  

 

• TBI Community-National Information, Educational Resources, Dissemination and Technical Assistance Center for the Community Integration of Individuals with Traumatic Brain Injury -www.tbicommunity.org
  

 

• National Institute of Neurological Disorders and Stroke, NIH -Reducing the burden of neurological disease -www.ninds.nih.gov-800-352-9424
  

 

• National Institute on Disability and Rehabilitation Research-Provides leadership and support for a comprehensive program of research related to rehab of persons with disabilities - www.ed.gov/about/offices/list/osers/nidrr -202-245-7640
  

 

• National Resource Center for Traumatic Brain Injury-Providing info for professionals, patients and family members of TBI- www.nrc.pmr.vcu.edu/
  

 

• National Resource Directory-online source for wounded, ill and injured service members, Veterans and their families. -www.nationalresourcedirectory.org -National Resource Directory -An Online Partnership for Wounded, Ill, and Injured Service Members, Veterans, Their Families, and Those Who Support Them -www.nationalresourcedirectory.org
  

 

• North American Brain Injury Society-Organization for Brain Injury Professionals-ww.nabis.org/ – 703-960-6500
  

 

• Traumatic Brain Injury Central-Rehabilitation Research and Training Center on Traumatic Brain Injury Interventions – www.tbicentral.org
  

 

• Safe Kids Worldwide-Global network of organizations whose mission is to prevent accidental childhood injury-www.safekids.org
  

 

• Sesame Street Workshop — Talk, Listen, Connect: Deployments, Homecomings, Changes-bilingual educational outreach initiative designed for military families and their young children to share.-archive.sesameworkshop.org/tlc
  

 

• Social Security Administration -Social Security services - www.ssa.gov -800-772-1213
  

 

• TBINET-online support groups for TBI -tbinet.org/support1.htm
  

 

• The Bob Woodruff Family Fund- resources and support to service members, veterans and their families to successfully reintegrate into their communities -remind.org
  

 

• ThinkFirst -National Injury Prevention Foundation -www.thinkfirst.org

 

 

 

What resources do you use most often when researching head injuries? Have we covered them all?

 

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